Spinal Cord Society

It’s that time of the year again, the Spinal Cord Society’s annual golf tournament is coming up Monday, September 14 and will be held at Olde Liberty Golf & Country Club in Franklinton, NC.

Remember my friend Stephanie…

This July marked the 25th anniversary of her accident that left her confined to a wheel chair. The anniversary also comes at a time when the Spinal Cord Society has made great progress in cure research for chronic spinal cord injury. Unfortunately the promising news comes at a time when donations are at a extremely low level. We all are tightening our belts and being very selective in the causes we support. Please consider putting your efforts and donations where they will offer the maximum return.

And of course there's Uncle J ;)

The Spinal Cord Society does not have a lot of marketing or glitz, but is filled with grassroots support of friends and family of the paralyzed community. Every dollar you submit will be used only for cure research and support of the trials needed to expand the knowledge required for cure. The Spinal Cord Society operates its own lab from grassroots support and does not solicit government funding. Several breakthroughs in areas affecting the spinal cord injured have been pioneered by the Spinal Cord Society. The recent break through has been submitted for peer review in leading scientific journals. When published, the information will be available on the website. http://www.spinalcordsociety.com

There are several ways that you can show your support:

1) Join this cause on face book:
http://apps.facebook.com/causes/328057/76089378?m=bf068487

2) Become a sponsor of the 2009 Scramble for a Cure.
http://www.spinalcordsociety.com/chapters/raleigh/2009Brochure.pdf

3) Purchase Event Tickets by contacting me or calling Stephanie (919) 554-9627

4) Donate online at: http://www.spinalcordsociety.com/fundraising.html

4) Drop Stephanie an email in support of her efforts: mailto:scs-nc@nc.rr.com

You can view pictures of last year’s golf tournament and benefit auction at:
http://www.spinalcordsociety.com/photo.html

Head Shots! ;)

Here's a few recent pictures that were taken at Crewe's birthday party, while Grace was trying to talk to her Gigi...

Crewe's 1st Birthday Party

Sunday evening the family gathered together to celebrate Crewe's first birthday!

We had the cutest cake squares!

Is it time for me to dig in yet?

Here Mom & Dad, have some too...

A little for the hair...

My nephews are too cute!!

Happy Birthday Crewe-Bear! We love you!

Boat Ride

On Sunday, July 12th we went for a boat ride to Plymouth. I had never been to Plymouth by water, so it was a first for me! Here are a few pictures of our ride!

Dermatologist

During the first six months of life, 5-10% of hemangiomas ulcerate during their rapid growth phase. Although the hemangioma itself, isn't painful, the ulcerated lesion is and is at risk for bacterial infection. Traditional therapy includes topical antibiotics, and local or systemic steroids.
Grace has been on topical antibiotics for just over 2 weeks now. We went back to Duke yesterday for a check up and while we were there they went ahead with the laser treatment. Laser treatment has been found to accelerate healing and reduce pain within few days, often after a single laser treatment. Laser-treated lesions heal in one to five weeks.

They hit me with the laser on the bottom side of my arm so I could see what it felt like. It felt like a light pop of a rubber band. Then they zapped Grace's 3 ulcers. The process took all of 15 seconds and we were out of there. Grace did squeal, but after a bottle, she was fine. We go back next Thursday to determine if more laser will be needed. They seem to think that the one closest to her neck will need more than a couple of treatments, but it will be determined on a week by week basis.

Just thought I'd give you an update! Hopefully these ulcers will go away soon!

Crewe

Happy 1st Birthday Crewe! We Love you!!

Lilley & Grace

Yesterday Jenn & Lilley came over to visit! We got a chance to take a few pictures of the girls together!